Finally Diagnosed

[I'm Gone 60]

Kind of like Irritable Bowel Syndrome.

Seems quite a few people in this thread have that problem. LOL

[Trumplestiltskin 5,791]

Kind of like Irritable Bowel Syndrome.

Seems quite a few people in this thread have that problem. LOL

Tell me about it. I think the doctors tell you that so that they don't have to do the work to find out exactly what's wrong with you. Because everyone's body chemistry is a little different, and most people are not allergy tested - its easy to write it off as something general.

[Ta Ta 1]

I was diagnosed with Fibromyalgia in 1989. Severe pain, it took me about 1 hour to be able to move

after getting out of bed. I lost interest in life itself. There were nights when I rolled around on the floor

in pain. Then I got deep tissue ( and I mean deep !! ) massages and things changed.

I was improving more and more and decided to become a licensed Massage Therapist to give to others

what I myself was given.

I thank God for leading me to this therapy.

I am now pain free, off all meds, and have been a Massage Therapist for 10 years, specializing in deep tissue therapy , with a well rounded knowledge in Fibromyalgia.

Please find someone in your area to help you. It works. I am a prime example from a patient as well

as a therapist perspective.

Eat well, sleep enough, work out lightly, and don't sit in front of the PC too much...move around.....tissues

will gel if you stay in one position too long.

This too shall pass !

[Englishsammy 17]

type2negative....what gives u the right to doubt Stina...do u know her?? Have u met her?? If u feel that way u shouldn't have even bothered to read her post, let alone comment on it!

[Reba 2]

I was diagnosed with Fibromyalgia in 1989. Severe pain, it took me about 1 hour to be able to move

after getting out of bed. I lost interest in life itself. There were nights when I rolled around on the floor

in pain. Then I got deep tissue ( and I mean deep !! ) massages and things changed.

I was improving more and more and decided to become a licensed Massage Therapist to give to others

what I myself was given.

I thank God for leading me to this therapy.

I am now pain free, off all meds, and have been a Massage Therapist for 10 years, specializing in deep tissue therapy , with a well rounded knowledge in Fibromyalgia.

Please find someone in your area to help you. It works. I am a prime example from a patient as well

as a therapist perspective.

Eat well, sleep enough, work out lightly, and don't sit in front of the PC too much...move around.....tissues

will gel if you stay in one position too long.

This too shall pass !

when I had money and medical insurance (which was before I got married and moved to the US) I used to go for regular chiropractic and massage. It really helped. It didn't cure me, but it helped.

I'm looking forward to having insurance and money again so I can start going again!

[Not Available 0]

type2negative....what gives u the right to doubt Stina...do u know her?? Have u met her?? If u feel that way u shouldn't have even bothered to read her post, let alone comment on it!

Meh, he's an a$$, when I see him post I dont even read it, I just skip over it. He isnt with me everyday to know my life. So if talking bad about me is how he enjoys passing his days, go for it, I'm just glad I can make someone's day a bit better.

As to the rest of you who realize that I am not looking for pity but for support (or was I under the wrong impression that this was a support site? lol) thanks. All the wishes, prayers, and advice has been greatly appreciated.

Edited September 9, 2006 by Stina

[KarenCee 3]

I bet all 100% consider cancer, aids, coronary somethhing a desease.

Type2Negative:

Those things ARE diseases. Obviously you've never seen someone suffer and die from one of these diseases. I have. I watched my beloved mother die of cancer. YES IT IS A DISEASE!!!!!!!!!!!! I would appreciate it if you keep your sarcastic azz comments to yourself. IF you have something you want to say to ME then please, by all means do so, but do it in a PM.

Edited September 9, 2006 by KarenCee

[Ta Ta 1]

Stina,

If you lived around here I would treat you for free........I am renting space in a Chiropractic facility

Take care,

Sabine

[almaty 19]

type2negative....what gives u the right to doubt Stina...do u know her?? Have u met her?? If u feel that way u shouldn't have even bothered to read her post, let alone comment on it!

Meh, he's an a$$, when I see him post I dont even read it, I just skip over it. He isnt with me everyday to know my life. So if talking bad about me is how he enjoys passing his days, go for it, I'm just glad I can make someone's day a bit better.

As to the rest of you who realize that I am not looking for pity but for support (or was I under the wrong impression that this was a support site? lol) thanks. All the wishes, prayers, and advice has been greatly appreciated.

he is a sh!t disturbing troll...probably been banned previously and created a new avatar and story.happens allot here

Edited September 9, 2006 by almaty

[Reba 2]

here is a letter that is posted on many fibromyalgia support sites, I found it fibrohugs

The Letter To Normals

Hello Family, Friends, and Anyone Wishing to Know Me,

Allow me to begin by thanking you for taking the time out of your day to spend some time with me and get to know me better. A person’s time is their most valuable asset and yours is appreciated.

I want to talk to you about Fibromyalgia (FM) and Chronic Myofascial Pain Syndrome (MPS). Many have never heard of these conditions and for those who have, many are misinformed. And because of this judgments are made that may not be correct… So I ask you to keep an open mind as I try to explain who I am and how FM/MPS has assaulted not only my life but those whom I love as well.

You see, I suffer from a disease that you cannot see; a disease that there is no cure for and that keeps the medical community baffled at how to treat and battle this demon, who’s attacks are relentless. My pain works silently, stealing my joy and replacing it with tears. On the outside we look alike you and I; you wont see my scars as you would a person who, say, had suffered a car accident. You wont see my pain in the way you would a person undergoing chemo for cancer; however, my pain is just as real and just as debilitating. And in many ways my pain may be more destructive because people can’t see it and do not understand....

Please don’t get angry at my seemingly lack of interest in doing things; I punish myself enough I assure you. My tears are shed many times when no one is around. My embarrassment is covered by a joke or laughter, but inside I want to die....

Most of my "friends" are gone; even members of my own family have abandoned me. I have been accused of "playing games" for another’s sympathy. I have been called unreliable because I am forced to cancel plans I made at the last minute because the burning and pain in my legs or arms is so intense I cannot put my clothes on and I am left in my tears as I miss out on yet another activity I used to love and once participated in with enthusiasm.

I feel like a child at times... Just the other day I put the sour cream I bought at the store in the pantry, on the shelf, instead of in the refrigerator; by the time I noticed it, it had spoiled. When I talk to people, many times I lose my train of thought in mid sentence or forget the simplest word needed to explain or describe something. Please try to understand how it feels to have another go behind me in my home to make sure the stove is off after I cook an occasional meal. Please try to understand how it feels to “lose” the laundry, only to find it in the stove instead of the dryer. As I try to maintain my dignity the Demon assaults me at every turn. Please try to understand….

Sleep, when I do get some, is restless and I wake often because of the pain the sheets have on my legs or because I twitch uncontrollably. I walk through many of my days in a daze with the Fibro-fog laughing at me as I stumble and grasp for clarity.

And just because I can do a thing one day, that doesn’t mean I will be able to do the same thing the next day or next week. I may be able to take that walk after dinner on a warm July evening; the next day or even in the next hour I may not be able to walk to the fridge to get a cold drink because my muscles have begun to cramp and lock up or spasm uncontrollably. And there are those who say “but you did that yesterday!” “What is your problem today?” The hurt I experience at those words scars me so deeply that I have let my family down again; and still they don’t understand….

On a brighter side I want you to know that I still have my sense of humor. If you take the time to spend with me you will see that. I love to tell that joke to make another’s face light up and smile at my wit. I love my kids and grandbabies and shine when they give me my hugs or ask me to fix their favorite toy. I am fun to be with if you will spend the time with me on my own playing field; is this too much to ask? I love you and want nothing more than to be a part of your life. And I have found that I can be a strong friend in many ways. Do you have a dream? I am your friend, your supporter and many times I will be the one to do the research for your latest project; many times I will be your biggest fan and the world will know how proud I am at your accomplishments and how honored I am to have you in my life.

So you see, you and I are not that much different. I too have hopes, dreams, goals… and this demon…. Do you have an unseen demon that assaults you and no one else can see? Have you had to fight a fight that crushes you and brings you to your knees? I will be by your side, win or lose, I promise you that; I will be there in ways that I can. I will give all I can as I can, I promise you that. But I have to do this thing my way. Please understand that I am in such a fight myself and I know that I have little hope of a cure or effective treatments, at least right now. Please understand….

Thank you for spending your time with me today. I hope we can work through this thing, you and I. Please understand that I am just like you… Please understand….

Copyright of www.fibrohugs.com Written by Ronald J. Waller

if you do a search for the title of this letter, you'll find dozens of sites with information and support for fibro sufferers.

[type2negative 0]

type2negative....what gives u the right to doubt Stina...do u know her?? Have u met her?? If u feel that way u shouldn't have even bothered to read her post, let alone comment on it!

I am insulti ng??? You are tripping balls lady. Peope calling me words are insulting. I just stated my opinion. Truth offends, I know. Sorry, No pity here.

Meh, he's an a$$, when I see him post I dont even read it, I just skip over it.

Wow... Thats a bit insulting. Heh. Whach your language Young lady.

[Marilyn. 340]

type2negative....what gives u the right to doubt Stina...do u know her?? Have u met her?? If u feel that way u shouldn't have even bothered to read her post, let alone comment on it!

I am insulti ng??? You are tripping balls lady. Peope calling me words are insulting. I just stated my opinion. Truth offends, I know. Sorry, No pity here.

Meh, he's an a$$, when I see him post I dont even read it, I just skip over it.

Wow... Thats a bit insulting. Heh. Whach your language Young lady.

but you don't know her so how do you know it is the truth?? you are just making assumptions that is a far leap from the truth....

I am glad you got it figured out, Stina.... all the best to you

[type2negative 0]

I bet all 100% consider cancer, aids, coronary somethhing a desease.

Type2Negative:

Those things ARE diseases. Obviously you've never seen someone suffer and die from one of these diseases. I have. I watched my beloved mother die of cancer. YES IT IS A DISEASE!!!!!!!!!!!! I would appreciate it if you keep your sarcastic azz comments to yourself. IF you have something you want to say to ME then please, by all means do so, but do it in a PM.

Did I Say those are not deseases???. Heh. Well i will explain to you.

Someone said: US is one of the 50% of countries that recognizes this fibro stuff as a desease. Well I said, may be its not a real desease, sinse I bet all 100% consider cancer, aids, coronary somethhing a desease.. Implying that if it was real (like stuff i mentioned there), 100% would recognize it. Heh

IF you have something you want to say to ME then please, by all means do so, but do it in a PM.

Well I didnt say anything here about you. You came with stuff. Heh . I reserve PM to share my personal informations with friends. Thats the purpose of PM. Everything else is Public.

Obviously you've never seen someone suffer and die from one of these diseases.

Using obviously in front of your every logical fallacy. Heh... Voting democrat 2008???

but you don't know her so how do you know it is the truth?? you are just making assumptions that is a far leap from the truth....

I am glad you got it figured out, Stina.... all the best to you

I know her enough from reading all the whining posts. I read about Fibrostuff. And I posted my opinion, that the problem is in the head. And you cannot be "diagnozed" withthis. X-ray wont show you anything. It is like: I feel tired, some pain". Heh. Well who doesnt??? after work???..

What is the scientific name for indulging in self pity???..

[Ban Hammer 13,337]

I bet all 100% consider cancer, aids, coronary somethhing a desease.

Type2Negative:

Those things ARE diseases. Obviously you've never seen someone suffer and die from one of these diseases. I have. I watched my beloved mother die of cancer. YES IT IS A DISEASE!!!!!!!!!!!! I would appreciate it if you keep your sarcastic azz comments to yourself. IF you have something you want to say to ME then please, by all means do so, but do it in a PM.

Did I Say those are not deseases???. Heh. Well i will explain to you.

Someone said: US is one of the 50% of countries that recognizes this fibro stuff as a desease. Well I said, may be its not a real desease, sinse I bet all 100% consider cancer, aids, coronary somethhing a desease.. Implying that if it was real (like stuff i mentioned there), 100% would recognize it. Heh

IF you have something you want to say to ME then please, by all means do so, but do it in a PM.

Well I didnt say anything here about you. You came with stuff. Heh . I reserve PM to share my personal informations with friends. Thats the purpose of PM. Everything else is Public.

Obviously you've never seen someone suffer and die from one of these diseases.

Using obviously in front of your every logical fallacy. Heh... Voting democrat 2008???

but you don't know her so how do you know it is the truth?? you are just making assumptions that is a far leap from the truth....

I am glad you got it figured out, Stina.... all the best to you

I know her enough from reading all the whining posts. I read about Fibrostuff. And I posted my opinion, that the problem is in the head. And you cannot be "diagnozed" withthis. X-ray wont show you anything. It is like: I feel tired, some pain". Heh. Well who doesnt??? after work???..

What is the scientific name for indulging in self pity???..

why don't you do something useful, like go play with gasoline and matches simultaneously?

[type2negative 0]

why don't you do something useful, like go play with gasoline and matches simultaneously?

Did it once... Man. Heh... Proved to be dangerous.