Finally Diagnosed

[aussiewench 9]

Ah but you see Fiona is someone I would never do that to for I like her... you on the other hand are a complete ####### and judgemental... and think you know it all... since you think you know it all - you should have known better.

Wow. So to summaraize:

1. Fiona used incorrect word

2. I asked What does it mean. (I really dont know this medical term).

3. You started mocking me that this word is wrong (I guess just spelled wrong).

4. I said well I am not the one who is using it, I am just asking a person who used it some clarification.

5. You called me an #######, and expressed your affection to fiona.

Heh... Hmmmm. Well. Since you Know correct spelling give it to us. And explain meaning as well if you please

google may be your friend

Edited September 9, 2006 by aussiewench

[gimygirl 0]

glad to see you finally got it diagnosed and can be treated for it. now that should keep down those who have hinted you are a hypochondriac

link

For the record, I don't think the diagnosis will deter those who think she's a hypochondriac. Fibro is widely over-diagnosed, much like ADD. If you complain of pain and fatigue, and the doctor can find no other cause, he/she often diagnoses it as fibro.

Just playing devil's advocate... If Stina says she has fibro, then I accept that as truth.

very true, larry. i wouldn't just take this 'blanket' diagnosis. i would continue to be aware of my body and how it feels because something serious could be underlying, but you would brush it off as fibromyalgia ... were you diagnosed by a rheumatologist or have a follow up visit with one, stina?? that's where i would start!

why do you all even pay attention to someone who spells on a 1st grade level? ignore it and it might go away

totally agree, joel! with the addition of this member, VJ's overall IQ & attitude seem to have plummeted! i have to laugh at the sheer stupidity of members (members who should really know better!) who actually quote and respond to him! *shakes head*

meaning zero disrespect and directed at no one in paticular ... do you realize how inferior you appear by trying to reason with a simpleton?? why publically embarrass yourself like that?

[Trumplestiltskin 5,791]

type2

You're a wanker and troll rolled into one. Just as with chronic fatigue syndrome....the sypmtoms are very real. I wouldnt wish any of these syptoms on my worst enemy......but I could make an exception

I've a suspicion that this guy might be the child of one of the other members - message boards have the effect of doing away with social factors like age and race, so that everyone is relatively equal. But you can still tell a lot about a person by how they use language and form ideas - this guy is clearly extremely immature and gets an obvious kick out of saying things to people he wouldn't dare to repeat to their face in public.

[AFQuaid 18]

Hi again

Correct Spelling: hypochondriac

Sorry for the confusion, I could never win a spelling contest.

Fiona

[Hilarious Clinton 452]

So I went to the doctor's appointment today and was told I have Fibromyalgia (google it if you are interested to learn more, I am too tired to type it right now lol).

He has me on medication (I've been on this before) and I have totally forgotten the lovely side effects that come with it for the first few days. I'm cold but sweating, tired, nauseous, the list goes on, but I know it will go away so it's just a matter of sticking it out. I am just happy to finally know whats going on so I can try to keep it under control.

at least you found out what it was. get better!

[Nizzy 1]

I hope you feel better Stina.

[Hilarious Clinton 452]

I know her enough from reading all the whining posts. I read about Fibrostuff. And I posted my opinion, that the problem is in the head. And you cannot be "diagnozed" withthis. X-ray wont show you anything. It is like: I feel tired, some pain". Heh. Well who doesnt??? after work???..

What is the scientific name for indulging in self pity???..

If I agreed with you I would tell you (I think everyone knows that). But I think you are wrong. If Stina was on here every day talking about this I would think she was a hypochondriac and you were right. But she doesn't at all. It's as simple as that.

[Richard&Maria 0]

Hello Stina & Everyone

I remember reading an article on M.E a good 4 months ago where it was proved for the first time it is a REAL disease because there were Physical findings in a postmortan examination where the spinal cord was inflammed. I jumped for joy when I read this not because of the patients death but because it was proved once and for all. I used to have alot of friends with ME/CFS/FM and myself suffer from a similar state of chronic pain and fatigue associated with a muscle condition. Sometimes doctor can be total chopf###s just because they cannot "see" the condition therefore it must be a figure of that individules imagination. I like many with a medical condition that is misunderstood have been told I'm a hypercondriact because I expressed I had breathing issues and heart palpitations. My neurologist did nothing and left me to get on with it after insulting me. Later that year I got so bad I had to call a doctor out in the middle of the night to be eventually diagnosed with chronic untreated asthma.

I think you are very brave to have kept fighting for an answer. I imagine you probably feel overwelmed right now but relieved in a way about having a "name."

Check out this. It's a lovely story I'm sure you could relate to.

http://www.butyoudontlooksick.com/2006/02/...theory.php#more

Fiona

Gosh Fiona, this is a real soul searching story. I felt this was my own life story. I am truly blessed with a fiance in Richard who understands that I have good days and bad days, and my handicapp has made me thankful for every minute of good day, and to treat the bad day as a challenge and wait for another good day to come. Even my children have been more aware of the meaning of blessings of a good day without pain and discomfort.

In spite of this, I have made it through life as a single mother of 3 boys and have climbed up the career ladder as a Vice President of a telecoms compnay. But the greatest achievement is that I am able to communicate this blessing and touch the lives of other people.

Truly, life is worth living if we are able to reach out to others.

Maria

[Kathryn41 3,205]

I'm glad you finally have a diagnosis Stina, although I am sorry you are faced with this condition. A very dear friend of mine has been afflicted with fibromyalgia for years. In her case it was triggered by a car accident and the nerves and muscles went into overdrive reaction. There are days where she is only able to cimb up the stairs in her home on her hands and knees because of the pain. I know she has good days and she has bad days and has tried a varierty of medications - some which help for a while and then need to be changed. The Canadian CPP disability programme was nefarious for refusing to recognize fibromyalgia as a valid diagnosis until fairly recently. My friend is one of the first who was successful in obtaining CPP Disability based on her fibromyalgia as she was definitely no longer able to work as a nurse. Just because many of the tests they use to determine illness don't show significent results does not mean that the condition is false, merely that we are not yet using the right tests for diagnosis. Who knows what regular MRIs would show but because of the cost or lack of availability, they are not used in diagnosis. Yes, 50% of the world now recognizes its validity as a medical condition; the educated 50%. Many people with Lyme Disease were told it was all in their head too - until the right tests were done to determine that they had this chronic and uncureable tick borne disease. So hang in there and know that even if there isn't substantial help available right now, every day brings new discoveries and treatments. Good luck.

Edited September 13, 2006 by Kathryn41

[Reba 2]

currently the only way to diagnose fibromyalgia is to rule out everything else.

They were testing me for rhumatoid arthritis when I was diagnosed.

[dims1 0]

Hi....

It's to bad that many people laugh at this problem like it's nothing.

Well I guess until you actually have it, you will never know.

My sister's husband had it so bad he lost his job and couldn't even get out of bed.

My sisters are into organic cures,hehehe! Got to admit, they are pretty good at finding things to help others.

Anyway here is what my sister said about what helped her husband start living a normal happy life... Maybe it will work for you!

-------------sisters email----------

Hi bro,

About a fix for Fybromyalgia....

It's Aloe Vera Juice! It MUST be cold pressed, and from the whole leaf to work.

2 Tablespoons morning and night in a little juice for 1 week.

Second week, go to 3 tablespoons.

Third week, go to 4 tablespoons, and stay at 4……….Johnny found relief in 5 weeks.

Sometimes it takes a couple of months…..It depends on the person.

Aloe Vera Juice contains one of the 7 essential sugars we need for tendon health and repair of ligaments and muscle tissue.

Unfortunately, our soil in this nation is totally depleted of this essential sugar.

The Aloe Vera plant is loaded with it, but again, unless it is cold pressed and from the whole leaf, it will NOT work.

Getting good rest helps as well.

Love, sis

Hope this helps somone!

Mike