Shriners Hospital referal

[JanaknJanet 0]

Hi all. Those that remember.. my daughter Nikki was told she has a Osteoma.. a bone tumor. it most likely is benign but due to the location and size she is being referred to Shriners Hospital for treatment.

Her Orthopedic surgeon was going to do the surgery but the treatment was denied by my insurance. I am appealing the decision but at the sametime her Doctor feels that this treatment might be better at the Shriners hospital.

I talked to her nurse yesterday she said she will be sending me all the forms.. so nooowwwwww..... I will fill them out.. and submit..

if the Shriners hospital feels she can benefit they will take the case..

Does anyone here. in VJ know of anyone that has been referred to Shriners? I know if she is accepted it is wonderful.. Portland Oregon (where I live) has the Orthopedic/Pediactric hospital. So we will be lucky. I am hoping that they wont take too long in their decision... who knows..

If anyone has had to use them... my question is... how was the process... did it take along time to get in.... or approved? input?

Our thanks go out to everyone here for their support and prayers...

[Chica Yeyé 41]

sister, I am sorry to hear that

A little friend of ours -she is 9- just had surgery in that Portland hospital to remove an ugly mass from the base of her brain (eeek, you don't need the details). But anyways; the state of Oregon paid for the whole thing. I don't think it was the Shriners though. Do you want me to find out?

prayers and luvz

[JanaknJanet 0]

The hospital here in Portland is one of the Orthopedic specity hospitals.. on the website it does list her type of bone problem as one of which they treat. If she is accepted by Shriners.. they take care of everything.. treatment surgery and everything is covered. I just hope that the wait for decision is not too long..

I put a call into Shriners to ask a few questions.. .. hopefully I get a return call today.. .. augh.. I should be getting the papers from the doctor today and will get them forwarded onto Shriners within the next day... then the wait will begin..

[Chica Yeyé 41]

Do call them sister. Also, I am pretty sure the state also has a special fund for children major surgery and treatments. Look into that.

[reeses16 8]

Sorry to hear about your daughter. I wish Nikki all the best. I think you should get a decision fairly quickly considering the seriousness of the cases that they deal with. Please post and let us know what happens.

[faithinit 0]

Hi all. Those that remember.. my daughter Nikki was told she has a Osteoma.. a bone tumor. it most likely is benign but due to the location and size she is being referred to Shriners Hospital for treatment.

Her Orthopedic surgeon was going to do the surgery but the treatment was denied by my insurance. I am appealing the decision but at the sametime her Doctor feels that this treatment might be better at the Shriners hospital.

I talked to her nurse yesterday she said she will be sending me all the forms.. so nooowwwwww..... I will fill them out.. and submit..

if the Shriners hospital feels she can benefit they will take the case..

Does anyone here. in VJ know of anyone that has been referred to Shriners? I know if she is accepted it is wonderful.. Portland Oregon (where I live) has the Orthopedic/Pediactric hospital. So we will be lucky. I am hoping that they wont take too long in their decision... who knows..

If anyone has had to use them... my question is... how was the process... did it take along time to get in.... or approved? input?

Our thanks go out to everyone here for their support and prayers...

My prayers are with you and your daughter.

I can not give you those kind of answers, but I can tell you that as a child I was a patient at the Shriners Burn Unit in Boston. I spent many years going back and forth (little different process than hers). However, though this was 22 years ago, I can tell you my memories of the hospital, is not one of fear or trauma, which is what I was experiencing, but rather comfort. The Shriners are a blessing, the nurses, volunters are like no other. And the doctors, I believe, some of the best in the country. If your daughter is lucky enough to be accepted, she will be in the "best" of hands, in every and all possible ways.... What they did for me was amazing, truely miraculous work.

I wish your daughter the best....