Thursday's Thread

[Staashi 371]

I need to call my sis-in-law who's a doctor and works in a hospital up in Philly. She's the one who told me to not accept the third diagnosis of Mono in three years, and that it was totally ridculous and just a reason to get me out of the office with an enlarged splean, liver damage, critically low platlets, and high ana levels which of course can all be caused by a sever case of mono (and there is a derivative as well), but you just don't get that illness repeatedly like that and it can also cause permanent damage and kill you if you don't rest and take care of yourself (which of course I asked my doc. about and he said it was completely not nessicary)

Hmm... maby I should check out that message board for my ranting

Polar, have you been tested yet for Hepatitis?

I would have to look at my hospital records again.

I have the immunization for Hepatitis B from work and they ran tests for diabetes, HIV, CMV, several immune diseases that have defining tests, thyroid levels, you name it they tested me for it.

The hard part is that alot of the test results came back after I was discharged from the hospital for mono (since I those anit-bodies, and have had since I was 13 ) and the hematologist had to be nagged to even reconsider the possibility of mis-diagnosis after 3 months when I had not improved. That's the most I got out of him.

All I know at this point is my ana levels are high, my splean is now at the borderline of enlarged so they have checked that off the list, and my platlet levels are still below normal but at least they are not critical anymore, and I have a diagnosis of autoimune disease and possible "chronic low platlets" - that was my diagnosis in full and was told there is no treatment nessisary and should live my life like normal (but call them if I randomly start bleading again and won't stop) The least he could have done was tell me to see a nutritionist and make some lifestyle changes to help my splean and digestive system.

Am I crazy for wanting more information and possibly :gasp: a treatment plan?

No, you're not crazy. Everyone deserves to be diagnosed if they are ill. I hope you can find a resolution to all of this.

[sara535 15]

PB your story sounds very much like whats going on with my best girlfriend, including the multiple mono diagnoses. The few people I know who have autoimmune disorders have all described a very similar incredibly frustrating path to diagnosis let alone treatment.

I dont think you are crazy to want more and in the end if YOU dont push for some help then who will?

Keep at it until you get somewhere! good luck and hang in there

[Nothing1234 2]

noura do you have tmobile too

annie, how can I take a video from my pearl? or can i even do it?

Do you have the Pearl 2? Yes, you should be able to get video on it and send as well. If the original Pearl no...it never worked for me

[HLM 1]

Happy thursday everyone...

Going to the dentist in an hour and im soooooooooo dreading it!!! I HATE DENTISTS AND I HATE TOOTHACHES!!!!! my 5 yr old cousin went n shes soo courages n im like OH NO LOL

PB im sooo sorry about ur illness i really pray u find a treatment or solution for all this and get well soon sweetie

Tasha im sorry about what happened may be it was for the best

Nawal- kiss those babies for me!!

Amal- have fun in Dallas

Donna- Im praying for ur MIL

to whomever i missed have a good day and insha Allah all will be good.

[Badrs Love 0]

Happy Thursday! Badr just got on a plane and I'm a ball of nerves. He lands in San Fran tomorrow and I can't wait to see him. I hope everyone is having a great day.

[HLM 1]

I ask Allah to bring him to u safely have a very happy reunion

[~ Karima ~ 0]

dont worry carrie, It WAS the cinnamon...lol...loving the new siggy of ayman, he gets cuter everyday!! Hows his eczema doing? .zaids seems to be getting worse he goes to the doc on the 4th for his 4 month shots, i will ask then if they can recommend something else besides the Eucerin..

with my house clean already, and not a whole lot of money to go blow at the stores, i really have nothing to do...if it wasnt so muggy i would take zaid for a walk...i think its suppose to rain the next few days here...

Nawal, what is the deal with our phones?

Thanks, so does Zaid. Ayman's eczema comes and goes. If I don't lube him up everynight with cream and then put the cortisone on the bad spots, it will get really bad. It's mainly behind his ears and in the creases of his arms and legs. Sometimes a spot or two on his hand and face. We go for his shots on the 5th. We also need to talk to the Dr because I think he needs to be recircumsized. I just worry the insurance won't pay for it. When it was supposedly done at the hospital the Dr charged $400, for nothing.

I hope your Zaid does well with the shots and the Dr takes care of the eczema.

[Ban Hammer 13,334]

Happy Thursday! Badr just got on a plane and I'm a ball of nerves. He lands in San Fran tomorrow and I can't wait to see him. I hope everyone is having a great day.

:dance: :dance:

[polarbear 0]

PB your story sounds very much like whats going on with my best girlfriend, including the multiple mono diagnoses. The few people I know who have autoimmune disorders have all described a very similar incredibly frustrating path to diagnosis let alone treatment.

I dont think you are crazy to want more and in the end if YOU dont push for some help then who will?

Keep at it until you get somewhere! good luck and hang in there

Thank you, and thanks Staashi - I'm going to try another doctor and see if they are willing to take this on and have my records transfered. I'm lucky the hospital did so many tests and I have so much information - I've also maxed out my payments on insurance and pay minimal amounts now

Happy Thursday! Badr just got on a plane and I'm a ball of nerves. He lands in San Fran tomorrow and I can't wait to see him. I hope everyone is having a great day.

YAY!!! What a great ending

[Nothing1234 2]

PB your story sounds very much like whats going on with my best girlfriend, including the multiple mono diagnoses. The few people I know who have autoimmune disorders have all described a very similar incredibly frustrating path to diagnosis let alone treatment.

I dont think you are crazy to want more and in the end if YOU dont push for some help then who will?

Keep at it until you get somewhere! good luck and hang in there

HEY SARA!!

I just realized that the pineapple princess and the twins have the same pool float! Only your float is MUCH cuter! I'd love that one for Nour...Zain can stick w/ the blue float! LOL

[Mommy2ZaidnSalma 11]

carrie, my brothers boy had to get redone...My doc told me that every time i changed him to pull the skin down around it (i know this is TMI) and he didnt have probs...my sis in law wasnt doing it, and he had to get redone...sadly, i dont think insurance will cover it, most do one a year i think...that sucks girl, i remember the first days it was healing, yuck, i hope its quick and as pain free as possible for ayman...poor baby

zaid has eczema patches EVERYWHERE..alot on the backs of his legs and arms..they have now started on his chest, back and face too...they dont get too red, but, he has a strawberry birthmark on his cheek, and right around it gets very very irritated...what kind of cream are you using?

[Nothing1234 2]

BTW...for those interested in my Scorpion drama. I'm going scorpion hunting tonight with a black light...EWWW! I'm praying we hardly find any...which would mean our problem is not a big as my mind imagines at this point!

[Ban Hammer 13,334]

BTW...for those interested in my Scorpion drama. I'm going scorpion hunting tonight with a black light...EWWW! I'm praying we hardly find any...which would mean our problem is not a big as my mind imagines at this point!

they will usually kill each other off, so odds are you won't find many.

reduce places outside close to the house they can hide under. that will be a major help.

[Nothing1234 2]

BTW...for those interested in my Scorpion drama. I'm going scorpion hunting tonight with a black light...EWWW! I'm praying we hardly find any...which would mean our problem is not a big as my mind imagines at this point!

they will usually kill each other off, so odds are you won't find many.

reduce places outside close to the house they can hide under. that will be a major help.

Good idea! Thats a good plan for tonight...hunt and clean up anything that would be a "scorpion home".

[RAKASA 0]

noura do you have tmobile too

annie, how can I take a video from my pearl? or can i even do it?

I have AT&T - but I *do* get MMS from others... I dunno!